Listening to People with Intellectual and Developmental Disabilities in Health Research

Official Title: Can You Hear Me Now? Listening to People with Intellectual and Developmental Disabilities in Health Research

Purpose:

The goal of this research is to make new instruments to assess health-related problems and well-being for people with intellectual disabilities (ID). These instruments (tools) are surveys that ask people with ID about their health and quality of life. Some of the questions will ask about mental health. Other questions will ask about physical health. Still other questions will ask about social health and relationships. If you agree to be in this study, we would like to try out these questions with you.

Our goal is to create understandable and user-friendly surveys on health and quality of life for adults with ID. We want to create these instruments (tools) in a way that will help people with ID respond more fully to what is being asked. By getting people to share their own thoughts on health-related topics, we hope to better understand and meet the health needs of adults with ID.

Eligibility criteria:

Adults with ID must meet the following:
a) Be an adult 18 years of age or older
b) Adult must have a documented intellectual disability (ID)
c) Have a caregiver/support person who is willing to participate in the study

Caregivers/support persons must meet the following:
a) Be an adult 18 years of age or older
b) Know the adult with IDD fairly well or very well
c) In the past 6 months, seen/cared for the adult with ID at least twice per week

Contact Information


Chelsea Cobranchi
8336787782
rrtcnisonger@osumc.edu

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